Ambassadors and Patron

Ambassadors

Our Patrons and Ambassadors actively promote and support the services, activities, programs, clubs and fundraising efforts of our charity in its quest to assist individuals with disabilities and their families living with disability through the provision of support and funding.

Sunshine Butterflies Ambassadors are selected from a cross section of our Queensland community that includes business, sport, politics, health & media.

We are very honored to have a wonderful Patron, amazing Ambassadors, a growing network of dedicated and committed businesses, sponsors, supporters and of course our invaluable volunteers.

Bob Abbot - Patron

Former Sunshine Coast and Noosa Mayor Bob Abbot has been Patron of Sunshine Butterflies since it's launch in 2005.

Leanne said the support of the then mayor was one of the major reasons she “got back in the saddle” to give fresh hope and encouragement to so many families dealing with a loved one in need of special care.

 

Mayor Bob Abbot’s birthday became a major fundraising initiative for Sunshine Butterflies, when an in-house office party that saw all council staff wearing Mayor Bob’s signature clothing item: a pair of braces, caught media attention and soon grew into a Sunshine Coast community celebration to raise money for the Mayors favourite charity, Sunshine Butterflies.

The Braces Day concept 'Embracing allability– not disability' originating to celebrate the Mayors birthday quickly became a quirky idea to raise funds and awareness for those with a disability.

 

Rockability Ambassadors

Jimmy Davis

Taylor Moss

The Floating Bridges

Swim Ambassadors

Chris Fox

Kyle Richardson

Marayke Jonkers

Ryan Napoleon

Sport Ambassadors

 

Want to become a Sunshine Butterflies Ambassador

We’re currently looking for both local legends and celebrities to help spread the good word about what we do and of course when available, be a special guest during one of our art, music or sporting programs or events.

Contact Us

Fundraising Appeals

Hello, I'm Avalon Chambers

Avalon was born in 2011 at 30 weeks gestation, via an emergency caesarean section. Due to her low birth weight of just 1024 grams and a severe infection, Avalon suffered damage to the white matter in her brain. This is a condition known as Periventricular Leukomalacia (PVL), which i...

Read my story

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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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Former Sunshine Coast and Noosa Mayor Bob Abbot has been Patron of Sunshine Butterflies since it's launch in 2005.\n
\n

\n
Leanne said the support of the then mayor was one of the major reasons she “got back in the saddle” to give fresh hope and encouragement to so many families\n dealing with a loved one in need of special care.
\n

 

\n

Mayor Bob Abbot’s birthday became a major fundraising initiative for Sunshine Butterflies, when an in-house office party that saw all council staff wearing\n Mayor Bob’s signature clothing item: a pair of braces, caught media attention and soon grew into a Sunshine Coast community celebration to raise money\n for the Mayors favourite charity, Sunshine Butterflies.\n

The Braces Day concept 'Embracing allability– not disability' originating to celebrate the Mayors birthday quickly became a quirky\nidea to raise funds and awareness for those with a disability.\n
\n

 

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Donate to Sunshine Butterflies Donate Now

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ABN: 46 296 442 336 |\r\nNDIS provider registration Number: 405 000 9184

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", "params": { "name": "Template - Footer" }, "webapps_2": { "moduleName": "webapps", "moduleDescriptor": { "templatePath": "/Layouts/WebApps/Personal Fundraising - Members/list.html", "parameters": "render=\"item\",id=\"35707\",filter=\"random\"", "apiEndpoint": "/api/v3/webapps", "objectType": 34, "objectId": -1, "adminUrl": "/Admin/CustomContent_ItemList.aspx?CustomContentID=-1" }, "editableFieldTypes": { "description": "Html", "itemId": "Id", "name": "Text", "url": "Text", "releaseDate": "Date", "expiryDate": "Date", "lastUpdateDate": "Date", "weight": "Number" }, "items": [ { "description": "

\n

Avalon was born in 2011 at 30 weeks gestation, via an emergency caesarean section. Due to her low birth weight of just 1024 grams and a severe infection,\n Avalon suffered damage to the white matter in her brain. This is a condition known as Periventricular Leukomalacia (PVL), which is commonly fatal\n to premature babies.

\n

Avalon spent eight weeks in the NICU and SCBU units in total. She was the 'Feisty' child according to the nurses, which we came to realise was a blessing,\n as she will need all of that strength for the life journey she is on. By the time Avalon left hospital she was 37 weeks gestation and weighed 2.2\n kg. This weight is half the weight of a healthy child born at full term. When Avalon was one year old she was diagnosed with Cerebral Palsy spastic\n diplegia and dystonia. Avalon's condition affects one arm, both of her legs and her balance.

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From 33 weeks gestation, Avalon has been seeing Physiotherapists, Occupational Therapists, Speech Therapists and Specialty Therapists. She has responded\n well to all of these therapies and really enjoys the interaction and the feeling of achievement she gets.

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\n
As parents, we are constantly on the lookout for treatments and specialised equipment that will give Avalon the best opportunities. In 2013, we\n discovered a treatment centre called NAPA Center, in Los Angeles. The centre specialises in Intensive therapy, which utilises a special suit. Three\n weeks of therapy at The NAPA Center is the equivalent to twelve months of traditional therapy, and combined with all of the regular therapies she\n requires, the results are very encouraging. In March 2014 Avalon completed a three week Intensive Model of Therapy (IMOT) with outstanding results.\n If we can continue to provide these intensives three times a year, along with the specialised equipment and regular therapies she requires, Avalon\n will have a very good chance at gaining some valuable independence in her life.

\n

In November 2017, Avalon had an incredible surgery in the United States called Selective Dorsal Rhizotomy (SDR). This surgery has permanently removed\n all of the muscle tightness in her legs that cerebral palsy has caused. The surgery has greatly reduced any chance of muscular and joint deterioration\n in the future, allowing Avalon to live in a body that will not wear down and cause her immense pain. The cost of the surgery including air fares\n (travel), accommodation and living expenses was AU$130,000.

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Following the surgery Avalon has started her extensive rehabilitation program. This involves years of regular and intensive therapy, including a special\n trip to Step By Step therapy in New York, USA. The therapy will allow her to grow muscles that have never previously been used due to the muscle\n tightness, and to gain the strength she needs to continue forward in her ‘new’ body. Our annual therapy cost is now more than $60,000 which is\n virtually impossible to meet, but how can we put a price on her independence.

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This opportunity for Avalon was an amazing one and she was extremely lucky to have been selected after meeting strict criteria. With the correct rehabilitation,\n Avalon will achieve amazing things!!

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We thank you for helping Avalon to have that chance xx

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