Privacy

This Privacy Policy sets out our commitment to protecting the privacy of your personal information that we collect through this website www.sunshinebutterflies.com.au (Site) or directly from you. 

Please read this Privacy Policy carefully.  Please contact us if you have any questions. 

 

You providing us with personal information indicates that you have had sufficient opportunity to access this Privacy Policy and that you have read and accepted it.  

If you do not wish to provide personal information to us, then you do not have to do so, however it may affect your use of this Site or any products and services offered on it.

1. Type of personal information collected

Personal Information: The type of personal information we collect may include is set out on our website.

If we receive your personal information from third parties, we will protect it as set out in this Privacy Policy.

2. Collection and use of personal information

We collect and use the personal information for purposes including to contact and communicate with you, for internal record keeping and for marketing.

3. Disclosure of personal information

We may disclose personal information for purposes including to provide our products and services to you, and as required by law. Where we disclose your personal information to third parties for these purposes, we will request that the third party follow this Privacy Policy regarding handling of your personal information.

4. Access to and correction of personal information

Access: You may request details of personal information that we hold about you, in certain circumstances set out in the Privacy Act 1988 (Cth).  An administrative fee may be payable for the provision of information.  We may refuse to provide you with information that we hold about you, in certain circumstances set out in the Privacy Act.

Correction: If you believe that any information we hold on you is inaccurate, out of date, incomplete, irrelevant or misleading, please contact us by email. We rely in part upon customers advising us when their personal information changes.  We will respond to any request within a reasonable time.  We will endeavor to promptly correct any information found to be inaccurate, incomplete or out of date.

5. Complaints about breach

If you believe that we have breached the Australian Privacy Principles and wish to make a complaint about that breach, please contact us on the email address below.

Fundraising Appeals

Hello, I'm Finlay Mair

Hi my name is Finlay and I’m 9 years old.     I was diagnosed with a genetic condition called Spinal Muscular Atrophy, commonly known as SMA when I was 18 months old. SMA is a rare inherited disease resulting in the loss of nerves in the spinal cord and weakness of the muscles con...

Read my story

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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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\n

As Sunshine Butterflies receives no government funding and exists only through the kind generosity of community members such as yourself, all fundraising\n efforts are greatly appreciated. By supporting this vision to improve the lives of individuals and their families living with a disability, you\n are making a huge difference to many lives suffering tough times.\n
\n

\n

There are many FUN and CREATIVE ways you, your school or workplace can fundraise for Sunshine Butterflies.

\n

We would love to hear from you, so please contact us today and we can have a chat about your idea or help you\n get started to fundraise for a great cause.\n
\n

\n

Not matter how great or small... Every donation helps Sunshine Butterflies to provide an enhanced quality of life and opportunities for individuals\n and families living with a disability.\n
\n

\n

\n
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Donate to Sunshine Butterflies Donate Now

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ABN: 46 296 442 336 |\r\nNDIS provider registration Number: 405 000 9184

\r\n\r\n\r\n\t\t\t\t\t\t© { {globals.site.dateNow | date: \"yyyy\"}} Sunshine Butterflies | Privacy

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", "params": { "name": "Template - Footer" }, "webapps_2": { "moduleName": "webapps", "moduleDescriptor": { "templatePath": "/Layouts/WebApps/Personal Fundraising - Members/list.html", "parameters": "render=\"item\",id=\"35707\",filter=\"random\"", "apiEndpoint": "/api/v3/webapps", "objectType": 34, "objectId": -1, "adminUrl": "/Admin/CustomContent_ItemList.aspx?CustomContentID=-1" }, "editableFieldTypes": { "description": "Html", "itemId": "Id", "name": "Text", "url": "Text", "releaseDate": "Date", "expiryDate": "Date", "lastUpdateDate": "Date", "weight": "Number" }, "items": [ { "description": "

Hi my name is Finlay and I’m 9 years old.\n

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I was diagnosed with a genetic condition called Spinal Muscular Atrophy, commonly known as SMA when I was 18 months old. SMA is a rare inherited disease\n resulting in the loss of nerves in the spinal cord and weakness of the muscles connected with those nerves.\n

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The muscles most frequently affected are those of the neck and trunk that control posture, those of the legs and arms that control movement and those of\n the area of the ribs that help breathing. There is no known cure for SMA and 1 in 35 people carry the gene.
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I was fortunate enough to be classified as a type 3 due to being able to walk, however I lost that ability around 6 years of age and require the use of\n my wheelchair to get around. I struggle with respiratory at night and use a breathing machine to help. In the near future I will need spinal surgery\n to help with scoliosis. I rely heavily on the support of my family to toilet, shower and help manoeuvre my way around this world.\n
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I have weekly hippotherapy sessions and attend hydrotherapy twice a month. My mum and dads aim is to keep me as mobile as possible. I love to swim\n and attend disabled surfing 3 times a year, go fishing (I never catch anything) and playing Xbox! I will never run at school sports days, climb a mountain\n or ride a bike with my friends but in spite of my limitations, I have a happy outlook on life and a bright future (as a professional gamer!)
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My parents hope to raise money to assist us in funding a stand to sit Powerdrive Wheelchair. 
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This wheelchair will allow me to weight bear on my legs for bone growth and to help with the curvature of my spine. As I get older, a stand to sit wheelchair\n will allow me to stand just like the other kids, communicate with my peers and socialise at their height. It will give me a greater freedom of movement\n and independence.\n
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Mum and Dad say they are blessed to have such a happy boy and I am here to teach people that they should be grateful for the life they lead and never take\n it for granted. My family and I thank you for taking the time to read my story. Your support and generous donations will go a long way to helping me\n live my life to the fullest.
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Big hugs and kisses from Finlay xo
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If you would like to know more about my condition please contact\n
my mum and dad (Lyndsey & Graeme) at:  cav_78@hotmail.com
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